Thursday, October 25, 2012

This never goes as expected, does it?

Eric and I went to UT yesterday for my labs and for me to get the MRI (hopefully to figure out my pesky leg/back pain).

At my labs, my blood pressure was high.  I don't remember what the numbers were, but it freaked the nurse out.  She started making phone calls, and I ended up with an appt with a doctor who works with my doc.

The MRI was...noisy.  The nurses and techs were all so nice though.  I tried to listen to music, but you can't really hear anything in that tube with all the banging and growling.  After a really long time, it was finally done.

After that, we headed to the doc's office.  I got in right away, believe it or not.  The doc talked about my symptoms, took my blood pressure, and declared that I needed a break from regorafenib and some blood pressure meds.  Then he saw I had an MRI and wanted to check it out.  The doc looked at the scan pics for a few minutes, then decided to see if the techs could give him a quick read.

I was pretty glad to get what would have been about two weeks off the pills.  Eric and I joked around until the doc came back.  He was all serious. 

The MRI showed evidence of lesions (tumors) on my spinal meninges, which I believe are the layers that protect the spinal cord.  The MRI only covered a section of my back, so the doc was not able to say whether the cancer has spread anywhere else, like into my brain.  He suggested a brain MRI to be sure.  If there are tumors in my brain, they can be radiated.

The tumors on my meninges...they best react to Irinotecan.  The doc wanted me on that this week.  Also, I'm out of the trial.

I had a thought in my head that if the trial didn't work, I'd go back to Baylor.  Eric made my wishes known, so the UT doc talked to a doc from Baylor.  After a couple phone calls, I have an appt at Baylor tomorrow morning.

So how bad is this?  It must be pretty bad because even my Baylor doc's nurse sounded sad.  It's so weird because I'm still hobbling around and I don't feel like someone who has cancer right outside my spine.  Processing this is hard, y'all.  I prayed a lot yesterday, prayed for trust and faith. 

I think I need more information, but man, I'm freaked out. 

67 comments:

  1. Oh, jeez, Sheri. So much love to you right now.

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  2. Praying for peace, strength and wisdom. God is using you Sheri.

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  3. I'm sitting here staring at the computer and I don't know what to say to all this so I won't say anything except I love you and I'm praying and sheesh!! that is so much to process. so, very much to process.

    i'm here. thinking of you. and praying.

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  4. Hugs, tears and prayers for you and your family. So discouraging. I'm glad the doctor still has answers for you, Sheri.

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  5. Sheri - Our hearts and prayers are with you.
    Mike S.

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  6. I'm so sorry Sheri. I guess at least you're off the regorafenib for now. I hope that helps with the nausea and allows you to eat at least! We're praying for you every day and thinking of you.

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  7. Sheri, I'm so sorry you got this news. You're always in my prayers.
    Berritt

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  8. "I can do all things through Christ who strengthens me." Say this every morning. He will get you through this. Praying for you and your family. Miracles happen. Keep the faith.
    Meggie Gilbert

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  9. Praying for you Sheri. I've been reading the book of Job and know that a mighty God cares for you and has you in the palm of His hand.

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  10. Sheri, hugs and prayers for you and your family.

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  11. I am so sorry to hear the latest news. I'm praying for some good news soon!!

    Alison (Alreilly on DSD)

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  12. Oh, sheri...so much love to you!

    ~Suki

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  13. Sheri,I am so sorry to hear this. I am praying for you and your family !!!!! Joshua 1:9
    Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the LORD your God will be with you wherever you go.”
    AMEN !!!!!!!!

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  14. Sheri, sending you lots andlots andlots of love and support from down here in MX. Wish the news was different, will pray for the new drug to work ASAP.
    Tricia

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  15. Sheri, I am praying door you and your family! -Casey (kcmom2annika)

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  16. I'm praying for you friend. ((hugs)) and much love.
    ~Amber D.

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  17. I am praying for you and a big hug. xoxo

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  18. I'm sorry to read this latest turn of events. Sheri, I'm thinking of you all the time and sending you every positive vibe I have.

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  19. Sheri, I am so sorry! Prayers, vibes, and all things positive your way. Lynn (MGtG)

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  20. Hey Sheri I love you favorite sister! Be strong and know I think of you more often than I call or write. I am buying my plane ticket this week I hope to be out there for the second week of December. Tell Eric and Reese and Eli I am thinking of them too! I love you!

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  21. I hate cancer. I am praying for you Sheri.

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  22. Sheri, You sound like such a amazingly strong woman. This is news no one wants or should ever have to hear. Dan & I are praying for you and your family. Take care. Dan & Chris Backes

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  23. We love you and keep praying every day for you. Wish there was something else I could do...I dreamt last night that I came and cleaned your house for you ;) Just wish I could fix things, and do something to make your life easier right now. But, one of the many things I've learned from reading your blog, is that I have to put it in the Lord's hands, know I can't control it, and have trust in him.
    Thanks for all you continue to teach those of us who read your blog with your amazing strength and faith. Thanks for letting us be (as much as we can) on this journey with you.
    Sara & family

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  24. There are no words. I'm so incredibly sorry.
    Angel

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  25. Sheri, Your journey through this cancer stuff has taught me so much!!! My faith has been tested!!! I know I cannot go through a single day without looking up to God who cares for you and our family. I know that He has all of us in the palm of His Hand. I know that He cares for all of us! He has never been more real to me as He has in the last 3 years. I know that we are not in control of our lives. I will continue to pray everyday for strength, faith and trust. I am praying for healing. I love you !!!! We love you!!!Mom and Dad

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  26. So much love to you and Eric and those beautiful children, dear Sheri.

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  27. Prayers and big hugs from all of us !! I can't help but feel so sad. I'm so sorry you and your family have to go through this . You are too young to have to deal with this much Crap !! Praying for you everyday.

    :( jane

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  28. I am so sorry, Sheri. You and your family remain ever in my thoughts and prayers. With Love, Jessica

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  29. Why is it that the person least deserving of this battle gets stuck to fight it? I cannot tell you how many times I've thought of that over the last 3 years Sheri. As we follow along and wish we still lived closer to be there more in person for you, we realize that we cannot thing of a single BRAVER, STRONGER, and more GRACEFUL person to fight this crappy fight. Hang in there. Our thoughts and prayers are with you always.

    Love Jeremy, Anna, and Isabelle

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  30. Big hugs! Praying for you. Liz Gustafson

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  31. I'm praying for you, Sheri. <3 Mamilinda

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  32. If there is any way that we can help from up here, please do NOT hesitate to ask, anything. A ticket for your mom to come down, done. Just let me know, please. much love and you are at the top of the St. Agnes Siter's Prayer Chain....Aunt Barb

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  33. Sheri, I'm praying for you all the time, praying that the God of peace wrap you up in His perfect embrace and give you comfort and rest. Please let us know if you need anything. (Tani)

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  34. That's a tough one, Sheri. I'm so sorry. It's so unfair that you (or anyone) has to go through this. But you are so brave and funny and strong - you are inspiring to me. I'm sending lots of love from Africa. Cousin Jenni

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  35. No. No. No. No. You're the second blogger who has found out they have mets this week, also in a 'bad' (not that any place is good) place. Ugh. I wish prayers were answered the way we want because you'd be healed already. I wish we could have answers to our questions right now.

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  36. I am so sorry Sheri, lots of love and prayers for you and your family.

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  37. My heart is breaking for you. Wishing you peace.

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  38. Praying, believing. Peace and healing to you. God bless you and your family.

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  39. Another one of your fangirls adding more love to your pile <3

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  40. Sheri, When i read your blog I thought about this song. "Praise You In This Storm"


    I was sure by now
    God You would have reached down
    And wiped our tears away
    Stepped in and saved the day
    But once again, I say "Amen", and it's still raining

    As the thunder rolls
    I barely hear Your whisper through the rain
    "I'm with you"
    And as Your mercy falls
    I raise my hands and praise the God who gives
    And takes away

    [Chorus:]
    And I'll praise You in this storm
    And I will lift my hands
    For You are who You are
    No matter where I am
    And every tear I've cried
    You hold in Your hand
    You never left my side
    And though my heart is torn
    I will praise You in this storm

    I remember when
    I stumbled in the wind
    You heard my cry to you
    And you raised me up again
    My strength is almost gone
    How can I carry on
    If I can't find You

    But as the thunder rolls
    I barely hear You whisper through the rain
    "I'm with you"
    And as Your mercy falls
    I raise my hands and praise the God who gives
    And takes away

    [Chorus]

    I lift my eyes unto the hills
    Where does my help come from?
    My help comes from the Lord
    The Maker of Heaven and Earth

    [Chorus x2]

    He is with us no matter what we are going through!
    Amen!

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  41. <3 and positive cancer zapping vibes your way!
    Candee

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  42. I just found your blog today. I am sending prayers and love your way, Sheri. My cousin has rectal cancer, too. It is so hard. (((hugs)))

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  43. Love to you too Sheri. Sending prayers - for grace, strength, peace and solace.

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  44. It just sucks Sheri, you and your family do not deserve this. I have no understanding how you do all that is asked and still no relief. I wish God would bless your faithfulness. I know I haven't written to you only because I do not want to bring you down because I ham not good with words but you have been in my thoughts and pleading prayers.

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  45. I still don't know what to say.

    You SHOULD already know that I (and probably anyone here) would do anything you'd ever need, so feel empowered to ask if you find yourself needing anything.

    You've shown me a level of maturity, elegance and patience I can only dream to attain. I'm so honored you still hang with me after all the poop jokes.

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  46. So sorry about this news ... we're all behind you.

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  47. Your strength through this has been amazing Sheri. Sending prayers for healing, strength and peace.

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  48. Sheri, more love and hugs and prayers sent your way.
    - Heather (cabinfevermama)

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  49. Sending you thoughts of strength - Erinne

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  50. Sheri, I'm sending you every positive thought I have right now, and will continue to do so. Stay strong and positive! Much love to you and your family. xo

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  51. Our thoughts and prayers go out to you and your fight! You can do this!

    -Josh B

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  52. I am on regorafenib now. I feel like their are only 3 other people in the world on it. Haven't been able to finish a complete cycle due to side effects and complications. Have not been scanned yet. Stay strong and hopefully the Ireontecan will do the trick! Good vibes headed your way. Michele (mdhnyc1@Aol.com

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  53. Praying for peace and strength <3

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  54. Sending you so much love. You and your beautiful family are in my constant prayers.

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  55. I just read the 'recap' comment from yesterday. I have been following your blog for some time, and it's always so honest.
    I wish you strength, love, peace.

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