I didn't have chemo today, that's the good news!
Bad news: I didn't have chemo because it's not working anymore. Insert sad face here. The biggest tumor grew about a centimeter (so it's about 6.5 cm now). The doctor said now we have to get creative.
My options are a trial at Baylor that is set to start in a month. It works with some sort of hedgehog inhibitor (what WHAT?). It sounds like I would be a candidate, so my doc is working on that.
My other option is a drug called regorafenib, which is also in trials, but is anticipated to be approved by the FDA this fall. There's a trial going on at UT Southwestern, and my stuff has been faxed to them.
Whichever option comes down the line first is the one we'll go for.
Way in the back of my rational mind, I knew it was a pretty good possibility that I'd get to this stage of the cancer game at some point. The hearing of the crummy news never seems to get any easier though. Maybe it's me being 35, but I feel like, "How could this ever stop me?" Know what I mean?
Anyhoo, it is in my nature to look for the positives. So here they are.
No chemo today means that I won't be sick this weekend. Rock on!!!
Since the drugs on both trials, they will be free. That is a HUGE blessing. Also, UT Southwestern is in network, so things should be taken care of financially.
I have a great husband who tries to make me feel better, and kids who love me.
Those are the big ones.
So, from here? I hope to get an appt at UT Southwestern really soon, in the next couple of weeks. Please pray that I can be brave and strong on this path God has for me.