Eric and I went to UT yesterday for my labs and for me to get the MRI (hopefully to figure out my pesky leg/back pain).
At my labs, my blood pressure was high. I don't remember what the numbers were, but it freaked the nurse out. She started making phone calls, and I ended up with an appt with a doctor who works with my doc.
The MRI was...noisy. The nurses and techs were all so nice though. I tried to listen to music, but you can't really hear anything in that tube with all the banging and growling. After a really long time, it was finally done.
After that, we headed to the doc's office. I got in right away, believe it or not. The doc talked about my symptoms, took my blood pressure, and declared that I needed a break from regorafenib and some blood pressure meds. Then he saw I had an MRI and wanted to check it out. The doc looked at the scan pics for a few minutes, then decided to see if the techs could give him a quick read.
I was pretty glad to get what would have been about two weeks off the pills. Eric and I joked around until the doc came back. He was all serious.
The MRI showed evidence of lesions (tumors) on my spinal meninges, which I believe are the layers that protect the spinal cord. The MRI only covered a section of my back, so the doc was not able to say whether the cancer has spread anywhere else, like into my brain. He suggested a brain MRI to be sure. If there are tumors in my brain, they can be radiated.
The tumors on my meninges...they best react to Irinotecan. The doc wanted me on that this week. Also, I'm out of the trial.
I had a thought in my head that if the trial didn't work, I'd go back to Baylor. Eric made my wishes known, so the UT doc talked to a doc from Baylor. After a couple phone calls, I have an appt at Baylor tomorrow morning.
So how bad is this? It must be pretty bad because even my Baylor doc's nurse sounded sad. It's so weird because I'm still hobbling around and I don't feel like someone who has cancer right outside my spine. Processing this is hard, y'all. I prayed a lot yesterday, prayed for trust and faith.
I think I need more information, but man, I'm freaked out.